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Monday, October 29, 2018

Persistent delay

This morning I was scheduled to go in for the third biopsy to see if the latest dose of antibiotics worked to clear up the inflammation. Before the appointment, I got a call from my doctor who wanted to run an idea by me.

Since it's a teaching hospital, they have symposiums and clinics and world-renowned visitors every so often. Last week my doctor attended a presentation by an RPL specialist and presented my case. In short, the specialist recommended a test similar to the CD138 stain but more specialized in that the results offer the cause (type of bacteria/microorganism?) so the antibiotics can be more targeted. Additionally, he said that the inflammation is unrelated to the ERA and we don't have to wait for one to clear up to do the testing for the other. So my doctor recommended skipping today's biopsy which is just a yes/no test, since it is uncomfortable and won't give us any information we won't get otherwise, and instead doing the new test along with the ERA.

This change of plan doesn't necessarily delay anything. The plan was always to do an ERA test after this biopsy. The results are expected within 15 days for both ERA and new test so we're not losing any time there. It will only be a delay if it comes back positive and then we have to go through antibiotics again.

I'm not a fan of not seeing something through so I'm working through the uncomfortable feeling of this morning's last minute cancellation, but there was really no reason to go through with it given this new information.

I'm already assuming that I'll have to repeat antibiotics because it will just be easier to hear that news if I'm mentally prepared for even more delay. I did the calendar math and if it does come out positive then we're looking at FEB for earliest possible transfer. Can't even process that. One step at a time.

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