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Thursday, December 15, 2016

Follow up and then some

Our follow up appointment this morning went as well as it could. Our doctor is a nice person and says the right things to make us feel comfortable. He tries, but he doesn't have answers. If it were up to him he'd say to just keep everything the same and try over and over doing the same thing until it works. If treatment was painless and free of charge, yeah maybe we'd go that route. But since it's not, I feel the need to research the hell out of our options and try something different if the first things didn't work.

We went over several options. He doesn't seem confident that any of them are our silver bullet, so to speak, but is willing to give anything a try. He was patient and answered all our questions. I never felt rushed or dismissed, but I also didn't feel satisfied that we have exhausted all of our options. Here's a summary of what we talked about:
  • Blood thinners, baby aspirin, steroids, and anti-inflammatory medication
  • Intralipid therapy
  • Weight loss
  • Fresh IVF or another transfer
  • Hormone levels
  • Age
  • Next steps
Blood thinners, etc.
According to the doctor, the data isn't conclusive one way or the other. If it does work, there's no way to say this is why. He said side effects are minimal, if any. He said he would do both a bloodthinner and an anti-inflammtory combo. I asked about only using one because of the slight chance of side effects on the baby like cleft palate while on steroids. He'd be ok with doing only one, but his suggestion is if you're already gonna do it, go all in with both.

Intralipid therapy
He says that he wouldn't even know where to recommend going for this. The data is inconclusive and there is no current practice for any of the physicians in the clinic to recommend this. He knows about it but does not believe there is any value to this expensive therapy.

Weight loss
It's not the first time I'm hearing this. There's no way to know if this is a factor or not, but it's within my control (somewhat) and so I'm not dismissing it. I know it's the only thing he can come up with because everything else is testing normal. If I can lose weight I will, but I'm not pushing off treatment for this. 

Fresh or frozen
We have a unique challenge in that we need to have our embryos PGD tested. In a regular IVF cycle where you don't need genetic testing, you get to transfer on the 5th day after the egg reterival because your lining is primed due to the medication. Since we have one remaining embryo already tested, it presents with a few options: 
  • Option 1: just do a FET
  • Option 2: do a fresh IVF and transfer 6 days after the egg retrieval 
  • Option 3: do a fresh IVF and wait a cycle before the FET
I originally went in thinking we'd do option 2, with a fresh IVF and then a transfer as soon as possible. The doctor said that there is a slight chance that the extra estrogen from the stim cycle might cause a decreased chance of success, so I think we might do option 3. I know it's only a slight chance, but regardless of how small, I don't want to risk it. We have some time to decide. 

Hormone levels
I asked the doctor to review all my hormone levels and double check if everything looks good. No anomalies spotted. Thyroid, prolactin, etc. all ok. If there is a problem it's not showing up here. 

Age
I'll be 33 in March. I'm feeling an immense amount of pressure to not only have a child, but also give it a sibling. Nothing we've done to this point got us any closer to that goal. Some people think that they want a baby. I don't just want a baby - I want a big family. Dreaming big, even if it seems greedy.

We talked with the doctor about doing another IVF before another transfer in order to bank some embryos. He seemed confused at first, so I explained that if we want to have more kids then the next transfer we do, if it works (big if) I'd have to take off about two years from treatment, one for the pregnancy and one for breastfeeding/recovery/having an infant to care for at home. If I'm ever lucky enough to take home a baby, I want to enjoy it as much as possible before having to worry about the next one. I said I was worried about my age and that isn't it better to bank some embryos at my current age rather than waiting?  I'm getting ahead of myself, I know. I should probably try to focus on just #1 before anything else. 

He responded that I don't need to worry about that until age 37 or 38, especially since I've been a good responder until now. I'm not sure how much I believe him about that. I get that he's the professional and he's used to seeing women in their 40s trying to get pregnant, but the only thing I have going for me right now is that I'm still relatively young. Why not use it to my advantage if I can bank some now? 

My other thought process is that iyh when we are trying for #2, we'll have a #1 running around. If I don't have to wait, I'd rather get an IVF/egg retrieval out of the way now instead of having to deal with it later with a toddler. Again, I know I'm getting way ahead of myself, but this is part of my thought process. 

Next steps
So now we have to decide what we want to do next. We have so many unanswered questions and too many unknowns. Here's what we do know: 
    • We want to continue trying. 
    • We have one healthy embryo in the freezer. 
    • We know I can get pregnant. Embryo implanted and continued to grow. Therefore we will focus our efforts on keeping a pregnancy rather than implantation issues.
    • We know our insurance coverage won't kick in until mid-Jan at the earliest. 
    • We know that since insurance won't kick in before my next period is due, we're looking at a late Jan or early Feb cycle.
    • We know that we are nearing our lifetime maximum benefits for fertility treatment coverage so a lot of our treatment moving forward may have to be out of pocket at the reduced insurance rate. 
    • We know we want to bank more embryos before doing a transfer. 
    • We know we want to wait after the IVF to do a transfer.
    • We know we have two options for the next transfer: 
      • Change nothing
      • Add bloodthinner/steroid protocol
    • We know that losing weight is an option. 
Based on that information, we will discuss in the coming days what we want to do and take it from there. 

To his credit the doctor is willing to discuss any option. He's seems mildly interested in helping us succeed, but he's a skilled clinician who is professional and efficient at his job. He told us to take our time to think about things and let him know if we have any questions, asking us to include a phone number in our email if we want him to call to discus anything. 

I think the temporary plan now is to wait for my next period, start an IVF cycle late Jan, wait a cycle and transfer in Feb with the bloodthinner etc protocol. In the meantime to try to lose weight. I'll let that pickle for a few days and if it still seems like a good idea and we both still agree then we'll go forward with that.

I'm a little bit over all this. I'm feeling deflated and drained. This last loss really took a lot out of me. I don't have the same hopeful optimism. The fear of failure is so great that instead of calculating due dates after a transfer, I calculate how soon we can try again in case of a loss. I don't think I'll ever have a sense of relief where it relates to pregnancy.

We spent a large portion of our 20s in debt and unemployment due to the 2008 recession and it took us a while to climb out of it. We're now spending the best time of our 30s suffering with infertility. I feel like we were late to bloom and we're wasting the best of our youth just trying to stay afloat. Where did we go wrong? What did we do to deserve this? More importantly, how do we overcome? If not overcome, how do we shift our goals and priorities to still lead happy lives?

I don't have answers. I just have an emptiness. When I start feeling happy a guilt creeps in. I don't know why or what for, but I feel guilty for trying to be happy. Maybe in a way it feels as though being happy invalidates all the sad things we're going through. I think I just need to not rush the time it takes to let things heal.

We talked about going on a trip to try to get a little space and fresh surroundings, but it's the same issue again that comes up. The more money we spend, the less we have for treatment. Our 10 year anniversary is coming up this summer and I've been saving for a major trip for almost 4 years. It now seems like we may need to use those funds for more treatment. It's unfair and it sucks, but I feel like I have to try everything before giving up. I don't want to live with regrets. We will iyh celebrate our anniversary wherever we are together, but there's only a finite window to build a family. I wanted to compromise and have a quickie getaway nearby, but anywhere nearby that's worth traveling to during this season still has zika issues. It feels like we can't win.

I feel like if we just can keep going we can thrive, not just survive.  We just need a little bit of luck to get through this latest rough patch. I also need to remember to learn to enjoy the journey. I feel blessed that we have the opportunity to try again. Our life is currently being made up of these memories and it is what we make it. We are so fortunate to have the things we do - I'm too superstitious to list them here - and I am thankful every day. 

5 comments:

  1. I think this is a great plan. For what it's worth, I was happy when my Dr tested my tsh and anti thyroid antibodies and did a thrombophilia panel. We found elevated TPO antibodies, resulting in my taking levothyroxine every other day. I also found I have MTHFR which suggests I take folate and extra B vitamins over folic acid, plus I started baby aspirin. Don't know if all of this made the difference but all I know is tackling it from multiple angles is always a good thing. Good luck and God bless!

    ReplyDelete
    Replies
    1. Thanks for the info. Were you tested previously for thyroid levels or was this the first they tested TSH and antibodies? How was the MTHFR diagnosed?

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    2. Mthfr was through thrombophilia panel. My second opinion after 2 pgs failure transfers told me to do the antithyroid antibodies test and thrombophilia panel. Luckily my current RE agreed...

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  2. Hi, I've been lurking around on your blog anonymously for of couple weeks, but I'm all caught up now. In all my IVF blog searching, I hadn't found any written by Jewish women, so I was excited to find yours. (My husband and I are Jewish, too.) I'm doing IVF to PGD test all my embryos, because I'm a carrier for a rare genetic disease with a 50% chance of passing on. I didn't start my IVF process until June (so far, 2 retrievals and no transfer). Anyways, that feeling about you and your husband feeling you were late bloomers -- my husband and I are 32 and totally feel it, too! We spent so much of our 20s in college/grad school and we didn't really get our careers going until about 3 years ago! We finally have money and now we are spending it all on out-of-pocket costs for IVF -- it feels so unfair! I know it is hard, but I am sending you support and good wishes and hope. Here's my blog: singlegenescene.wordpress.com

    ReplyDelete
    Replies
    1. So glad you found your way here! I also haven't come across blogs by Jewish women, or people purposely doing IVF with PGD, which was part of the reason I started mine. Best of luck on your transfer!

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