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Wednesday, November 30, 2016

Raw and emotional

Everything seems to be a trigger, like the mundane things people take for granted. The fb fall family photoshoots are a big trigger for me, to the point that I had to take a fb break.

I cry when I think of how great the numbers were and how suddenly and abruptly it ended. We couldn't do anything to save our baby.

It was lightly raining all day and at one point I noticed that the pre-school nearby took the kids out on a walk in their raincoats and rainboots. They were splashing in the puddles outside my office window and just being adorable enjoying themselves in the rain. It took all I had not to fall apart in a pool of tears right then and there.

I totally thought that the ERA was the silver bullet. When we got those results I thought we finally had an answer. Three FETs were gone but at least we had a solution - we learned that the transfer day was wrong and I thought it was the answer. It may have been the answer to one issue: implantation. We passed that phase because we got great numbers. It was keeping the pregnancy going that became the issue.

I've read online that people treat repeated miscarriages with meds like prednisone and lovonox. I don't know much about these meds other than the fact that it's an anti-inflammatory and a blood thinner. Is my body rejecting the embryo? Definitely something to ask the doc at the wtf appointment. I scheduled it for week after next when my husband has off and can come with me.

I started taking calls again. Earlier in the week when family or friends heard the news and called I let it go to voicemail. I just couldn't. I was ashamed and disappointed that I didn't have better news to chat about. But I appreciate the calls and it helps to talk to people, even if they do most of the talking because I can't through the silent sobs.

The stats talk about how there's an 85% chance of a live birth for every three transfers. We're at 0% for four transfers. It's all the more painful because we don't know WHY. We can't pinpoint a problem so we can't work to fix it.

I know He has a plan. I know that whatever is supposed to happen will happen in the right time. But it's hard to accept a plan that includes this much pain. It's difficult to hold on to hope when I feel like we're being punished, over and over. It gets so much harder after every loss.

Tuesday, November 29, 2016

Lost

Spent most of the evening crying on my husband's shoulder. It's the tough times that show a person's true colors and he's been nothing short of amazing.

I tried to think of next steps but I just couldn't. It's too overwhelming. What guarantee do I have it will ever work? What if I choose to walk away now? Four IVFs. Four FETs. Countless medications and shots. For what? What do we have to show for it? We're back at square one.

I'm tired. We've been at this so aggressively for nearly 18 months with back to back procedures and failed attempts. I'm tired of the failures. I'm tired of the crushing heartbreak.

Even as recently as June 2016 I was less jaded, having "only" had two failed FETs, before the chemical pregnancies started.

In the past six months I've gotten daily PIOs in my butt, painful and bruising intermuscular shots. Two ERA biopsies chomping on my uterine lining to get some answers. We've had two pregnancies confirmed, only to have them end abruptly shortly after.

And what now? We did everything we could and it still isn't working.

My doctor doesn't seem to have any reason to change protocols. While the clinic has been professional and responsive, I'm done with their sterile factory environment. I'm just done.

I don't know what comes next. Do we do another IVF to collect more embryos? We've had mixed success with those in the past. It's expensive and painful. But what's the alternative?

We have one healthy embryo left. Do we transfer? Do we save it and try to get more? What can we change, if anything? I don't think they've created a test yet to tell me why I got pregnant and had great numbers but that the pregnancy spontaneously failed.

I don't know. 

I don't feel supported by the doctor. I don't have the tools to figure it out on my own. I don't have a direction to move in. I can't see with blurry vision through the tears. I can't see past the darkness yet.

Monday, November 28, 2016

FET 4: Beta 3

Hcg levels are down to 26.

It's over.

Another chemical pregnancy.

I don't know why this keeps happening. Not sure what we did wrong. I don't know if there was anything we could have done differently.

I can't stop crying. I'm home for lunch break and I need to get back to the office soon, especially since I got in late from traffic and waiting over 40 min for bloodwork this morning.

I don't know how to fix this. I don't know why this happened.

Sunday, November 27, 2016

One step at a time

Part of me wants the extended weekend to last as long as possible. The weeks ahead are going to be busy at work and it's going to be non-stop until mid-December, so the break has been nice. Another part of me is anxious to get to the clinic for Monday's bloodwork and hear the next update.

Since the Wegmans incident there have been less and less symptoms. Cramping is nearly gone. My husband and I kind of stopped talking about it all together. The Wegmans incident really scared us. Every so often I'll get a twinge or feel something in my lower belly and remember, but for the most part we're trying to keep it in the back of our minds until we know more.

I haven't worked out since last Tuesday. We've taken walks around the neighborhood but nothing to work up a sweat. I've kept my feet up and drank a lot of water and tea. Spotting stopped but I dread going to the bathroom, worrying I might see something new. The bloating has gotten better, no headaches, no fatigue. My appetite is gone which is unusual for me but I'm probably just full from all the liquid trying to stay hydrated. The only symptom to report is a phantom tight-undies feeling. It feels like my pants or my skirt is just a hair too snug, but I know it's not the clothing because the feeling happens in the shower sometimes too.

Thinking about the what-ifs is exhausting. I find it emotionally draining to think about all the things that could go wrong, but I want to enjoy what could possibly be the beginning of our child's journey into the world. I'm trying my best to put the worrying on the back burner and try to take things as they come.

Thursday, November 24, 2016

Happy Thanksgiving


I love Thanksgiving. It's one of my favorite days of the year. I love that it's a no-stress holiday. I love that it combines things I love: family and food. I love that the one legal holiday turns into a nearly 5-day weekend!

Spotting slowed significantly overnight and changed to brown, so I take that as a good sign that its stopped and this is just whatever's left over. I've googled as much as I can and everyone on the internet says cramping is normal. They also say that bleeding isn't automatically a miscarriage, but to monitor closely. So my doc knows about it and I've done everything I could. Possible harmless causes are either implantation or the meds, none of the other explanations the internet offered were relevant. At this point whatever is supposed to happen will happen.

I tried to think back about my day yesterday wondering about what could have contributed. I realized that with all that was going on -- getting bloodwork, running errands, cramming everything I could into the half-day before we were dismissed for the holiday weekend -- I'd been basically fasting the majority of the day. I drank a bottle of water on my way to the clinic for bloodwork, but other than that I wasn't hungry and didn't think of eating until after 3:00 pm. The Wegman's incident (as we are now referring to it) happened about 12:40 pm and after that I really had no appetite. Is that the cause? I worked out on Tuesday, for the first time since transfer, and felt extra cramping but nothing too intense. Was that it? We'll never know. But I'm going to be more mindful about making sure to stay hydrated and take it easy.

I did my best to relax yesterday evening and fell asleep around 9. I was up early this morning but it was still dark and decided not to start my day just yet. I feel like the only thing I can do to help things is to just take it easy and keep my feet up, so I'm enjoying my pajama day on the couch and in bed, getting up occasionally to baste the turkey or get a snack. Thanksgiving and the long weekend couldn't have come at a better time.

The cramping has subsided a lot and I barely feel it when I'm sitting or lying down, unlike yesterday when it was active all day. I didn't think anything of it because I'd been having cramping since transfer day. I plan to park it until bloodwork on Monday and hope for the best.

While it may sound cliche, I feel truly blessed this Thanksgiving. Wishing you and yours a very happy turkey day!

Wednesday, November 23, 2016

FET 4, Beta 2: The Good, the Bad, and the Ugly

The good news is that my numbers doubled: they're up from 448 to 954.

The bad news is that I've been having intense cramping and around lunch started spotting heavily. I called my nurse in a panic and I was told that spotting is normal. She said there are a few reasons for bleeding at this stage, such as the meds causing it. She said that while it seems alarming I should try to relax and just keep taking the meds. It was reassuring enough to keep me from crying but not enough to make me stop worrying. Next appointment is Monday for third beta so if I'm in pain or have heavier bleeding I need to call the after hours line.

The ugly is that I had just gotten to Wegman's for some pre-holiday shopping when I decided I should use the restroom quickly first. It was there that I discovered the bleeding so in my freakout I just ran to my car to call the clinic. I didn't get any of the groceries I meant to buy and didn't realize until later in the day.

We're cautiously optimistic. The numbers doubled, as they should. But as soon as I saw the red my happy bubble burst and I realized that this could all end at the blink of an eye. I'm happy the numbers doubled and that there's still a chance that this will be ok, but I'm so worried. I'm trying not to assume the worst just yet.

Monday, November 21, 2016

FET 4: Beta

It's been a long and exhausting day but there are important updates and limited editing below.

Left the house at 7:00 AM and made it to the clinic by 7:30 AM. Waited for 25 min before being called for bloodwork. Back in the car at exactly 8:00 AM. Made it to the interview place by 8:40 AM which gave me time to find parking, look over some papers and use the restroom before the 9:00 AM interview. I met with three sets of people and talked non-stop until 10:45 AM. From there I went to meet a friend for coffee. I got home at 12:25 PM at which point I got the call from the clinic.

You know how they like to see a number above 100? You know what my number was? 448.

4. 4. 8.

The doc said the number, and I'm like 148? That's great! He's like no and repeated it. I'm like 248? Wow! I finally got it on the third time. 448!!!!!!!!!!!!!!! Is that even a real number??? I didn't know numbers that high were even an option for first beta!

We told our parents and a close friend following our story. If you know me IRL please keep this news to yourself - we're obviously not ready to go public yet.

We're thrilled. I was so happy with the news. But it doesn't feel real yet. I couldn't sit still at home so I went in to work for the afternoon. They were actually texting me questions and because it's a short week they were time sensitive, so it was easier to just come in. It's fine - I enjoyed being around people with my little secret. In fact, meeting new people and learning about the new position in the interview made me appreciate my current job and team members even more.

It still doesn't feel real and every few minutes we remember and we're like, is this real? Is this really happening?? We're so cautiously happy, knowing that it's still so early and anything can happen. But for the time being... officially pregnant. Thank you Hashem. Thank you everyone who said tehillim.

Next bloodwork is Wednesday to confirm the number is doubling.

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